Since 1985, the Northwest Rett Syndrome Foundation has been your partner in finding information, support and resources for your child.

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Welcome to the Northwest Rett Syndrome Foundation

We encourage parents of girls and women with Rett Syndrome, as well as professionals, therapists, and educators with interest in Rett Syndrome, to join us. We welcome all ideas, advice, and comments to improve the lives of individuals with Rett Syndrome and their families.

The NWRSF is now on Facebook. Become a fan!

2014 Dates to Save!

The 5th Annual Run for Rett Syndrome will be held in Tumwater, WA on Saturday, June 7, 2014. It is always fun to see Rett families at this community event! The 29th Annual Conference & Family Retreat will be held in Seaside, OR from July 24-27, 2014.