Since 1985, the Northwest Rett Syndrome Foundation has been your partner in finding information, support and resources for your child.

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Welcome to the Northwest Rett Syndrome Foundation

We encourage parents of girls and women with Rett Syndrome, as well as professionals, therapists, and educators with interest in Rett Syndrome, to join us. We welcome all ideas, advice, and comments to improve the lives of individuals with Rett Syndrome and their families.

The NWRSF is now on Facebook. Become a fan!

NW Rett Family in Need

We have a Rett family in dire need. Lois Swann and her family lost everything in a house fire last night. They live in Bothell, WA. We have included a link to the news story and a link to a GoFundMe account that has been set up for them. They are in desperate need of wheelchair accessible housing.