Since 1985, the Northwest Rett Syndrome Foundation has been your partner in finding information, support and resources for your child.

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Welcome to the Northwest Rett Syndrome Foundation

We encourage parents of girls and women with Rett Syndrome, as well as professionals, therapists, and educators with interest in Rett Syndrome, to join us. We welcome all ideas, advice, and comments to improve the lives of individuals with Rett Syndrome and their families.

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Rett Syndrome Drug Trials Give Hope to Families

Neuren Pharmaceuticals released a statement about the status of their recent attempts to help women and girls with Rett Syndrome. You can read the press release by clicking here. If this statement is confusing (which is was for me), rettsyndrome.org's Steve Kaminsky helped to explain why the news is so good in this article.