March 15, 2017

About Us

The Northwest Rett Syndrome Foundation is a non-profit organization founded in 1985 by a group of parents and professionals who recognized the need for a strong regional support group in the Northwest. The NWRSF is governed by a Board of Directors consisting of parents and professionals.

Goals of the foundation

  • Facilitating early recognition of Rett Syndrome.
  • Promoting Rett Syndrome awareness.
  • Supporting research efforts in the Northwest.
  • Hosting an annual conference for families and professionals.
  • Creating parent-to-parent network.
  • Providing updated information on current research and therapies through newsletters.
  • Providing information on area resources and services.

Northwest Rett Syndrome Foundation Board of Directors

Troy Nelson, President, Washington
Molly Brignall, Vice-President, Washington
Gary Kostenko, Treasurer, Alaska
Julie Peterson, Secretary, Oregon
Dr. Mario Petersen, Medical Advisor, Oregon