May 14, 2017

Northwest Rett Syndrome Foundation’s 33nd Annual Conference and Family Retreat

July 12-15, 2018
Red Lion Hotel on the River – Jantzen Beach
Portland, OR

2 days and a half days of learning, sharing and getting up to the minute information about Rett Syndrome.

Sampling of Speakers:

  • Dr John Bissonnette will be speaking about the Sarizotan Study on breathing abnormalities.
  • Dr.Mary Jones will speak about Surgeries and Anesthesia
  • Dr. Gail Mandel will speak about the Genetic Treatment of MeCP2
  • Speakers from OHSU will talk about PT, OT and Speech Therapies

Registration