27th Annual NWRSF Conference & Family Retreat

Mastering the Tides of Rett Syndrome

July 26-29, 2012

Seaside Convention Center & River Tide Inn & Suites

Seaside, Oregon

Download the registration form by clicking here!

Your registration fee includes admission to all meetings, reception on Thursday night, Lunch on Friday, Dinner on Saturday, and free respite care for all your children.  New this year, you only have to pay for your first two non-Rett kiddos 6 & older!  We will also have FREE t-shirts for all Rett children.  If you want a t-shirt for yourself or anyone else, they will be $10 each.  They will come in youth, women, and unisex sizes and will be really sharp!

Tentative Conference Schedule

Thursday, July 26th

6:00-8:00 pm Registration & Social at the River Tide Inn & Suites.  

Friday, July 27th

9:00 am Introduction and Presentation of the theme by Jay Weimern, NWRSF President

9:15-10:00 am Report on the World Congress by Dr. Mario Petersen, MD

10:10-10:50 am Being Your Child’s Advocate by Vicci McKinney from WA PAVE

11:00-11:50 am Presentation of current Rett research by Dr. Sudge Budden, MD

12:00-1:30 pm Lunch Provided/Annual board meeting with a group picture of Rett children in their conference T-shirts!

1:30 pm Family/Free time & dinner on your own

6:00-8:00 pm Respite Care provided for all families.  Adults can go out on a date, meet-up with friends, etc.

Saturday, July 28th

9:00 am Announcements

9:05-9:50 am The Latest on AAC by Kim Elliot, SLP

10:00-10:40 & 10:50-11:30 Breakout Sessions 

• Using AAC for socialization with Kim Elliott, SLP
• Outdoors 4 All
• Rett Syndrome 101 for new families/therapists/teachers with Dr. Mario Petersen, MD
• Grandparents with Gary Kostenko

11:40-12:20 Doctors & Therapists Q&A

12:30 pm Lunch on your own & Family/Free time

6:00-8:00 pm Banquet & Keynote address with Paige Nues, IRSF

Sunday, July 29th

9:00-9:50 am Going Forward with Dr. Mario Petersen, MD

10:00-10:45 am The Need for a NWRSF Registry with Dr. Patrick MacLeod, MD

11:00-11:30 am Closing Remarks with Jay Weimern, NWRSF Presiden