2025 NWRSA Family Conference RecapWe are filled with gratitude as we look back on the 2025 Northwest Rett Syndrome Association Family Conference. This year’s gathering was a beautiful collaboration featuring the connection, learning, and community we strive to provide. It would not have been possible without the support and participation...

Summer is coming so it’s time to start planning your summer with fun activities for your family member with Rett Syndrome. Here we will supply some fun ideas to keep your family active and laughing all summer long.  Dance Party Turn up your favorite music and have a dance party....

So you just found out that your child may have Rett, or they have been officially diagnosed with Rett Syndrome. What’s the next step, and how do you cope? Rett Syndrome is a rare neurological disorder that is almost exclusive to occurring in girls. It has mild to severe symptoms...

Rett is a rare genetic neurological disorder; only 1 in 10,000 girl births result in the syndrome. However, your child was diagnosed with Rett, and you want to know the next steps for helping your child. Here’s what you need to know.  Get Educated  Educate yourself about Rett Syndrome to...