May 14, 2017

Resources

We have compiled some resources that you may find useful. The links the left will take you to info about clinics in the Northwest and other Rett syndrome websites. If you know of a resource that you feel should be listed here, please contact us.

Please note: Although we have made every effort to ensure that all links leaving this site are appropriate the NWSRF cannot be held responsible for information found on other Web sites.

Websites

RettSyndrome.org
Rettnet email group
Rett Angels
Ontario Rett Syndrome Foundation
Rett Syndrome Research Trust

Books

Health Care Providers

 

Dr. Mario Petersen, MD, Developmental Pediatrician

CDRC on the 7th floor of the Doernbecher Children’s Hospital
700 SW Campus Drive
Portland, OR 97239503
503-346-0640

 

Jennifer Caserta, MD, Pediatric Medicine

Northwest Pediatric Center
1911 Cooks Hill Road
Centralia, WA 98531
(360) 736-6778
http://nwpeds.com/

 

Russell Saneto, D.O., Pediatric Neurology
Children’s Hospital
4800 Sand Point Way NE
Seattle, WA 98105
206-987-2078
http://www.seattlechildrens.org/clinics-programs/neurology/contact/

Susan Apkon, Rehabilitative Medicine
Children’s Hospital Seattle
206-987-2114

Cheryl Parker, Orthopedics
Children’s Hospital Seattle
206-987-2109

Daniel Listig, Pediatric Gastroenterology
Mary Bridge Children’s Health Center
311 S. L St.
Tacoma, WA 98405
253-792-6630

Robert Cooper, Rehabilitative Medicine
Mary Bridge Children’s Health Center
311 S. L St.
Tacoma, WA 98405
253-403-4437
http://www.multicare.org/home/provider/robert-cooper

Adam Cramer, DDS, Rett Dad and Dentist to several Rett girls
Cramer Dentistry
1502 Bishop Rd.
Tumwater, WA 360-357-4500
http://www.cramerdentistry.com/services.php

Providence Physical Therapy and Aquatic Center for therapeutic swimming
1900 Cooks Hill Rd
Centralia, WA 98531
360-330-8627

Kirk Starr, MD- pediatrician
Pediatrics NW
316 Martin Luther King Jr Way
Tacoma, WA
253-383-5777

Majeed Al-Mateed, MD- pediatric neurologist
Multicare Tacoma
311 S. L St.
253-403-1419

Dr. James Jantzen, Pediatrician
509-665-5851
Wenatchee Valley Medical Center
900 N. Mission St.
Wenatchee, WA 98801

Susan Esco, MS CCC-SLP
Manager & Provider
AAC Solutions & Rehab Services, LLC
509-230-8876
www.aacsolutions1.comsusan@aacsolutions1.com

Pediatric Development Program Rett Syndrome Clinic
Legacy Emanuel Children’s Hospital
Portland, OR
503-413-4623
Lisa Shorett, Intake Coordinator
Clinic held first Thursday of each month