May 14, 2017


We have compiled some resources that you may find useful. The links the left will take you to info about clinics in the Northwest and other Rett syndrome websites. If you know of a resource that you feel should be listed here, please contact us.

Please note: Although we have made every effort to ensure that all links leaving this site are appropriate the NWSRA cannot be held responsible for information found on other Web sites.

Rettnet email group
Rett Angels
Ontario Rett Syndrome Foundation
Rett Syndrome Research Trust


Health Care Providers

Dr. Mario Petersen, MD, Developmental Pediatrician

CDRC on the 7th floor of the Doernbecher Children’s Hospital
700 SW Campus Drive
Portland, OR 97239503

Jennifer Caserta, MD, Pediatric Medicine

Northwest Pediatric Center
1911 Cooks Hill Road
Centralia, WA 98531
(360) 736-6778

Russell Saneto, D.O., Pediatric Neurology
Children’s Hospital
4800 Sand Point Way NE
Seattle, WA 98105

Susan Apkon, Rehabilitative Medicine
Children’s Hospital Seattle

Cheryl Parker, Orthopedics
Children’s Hospital Seattle

Daniel Listig, Pediatric Gastroenterology
Mary Bridge Children’s Health Center
311 S. L St.
Tacoma, WA 98405

Robert Cooper, Rehabilitative Medicine
Mary Bridge Children’s Health Center
311 S. L St.
Tacoma, WA 98405

Adam Cramer, DDS, Rett Dad and Dentist to several Rett girls
Cramer Dentistry
1502 Bishop Rd.
Tumwater, WA 360-357-4500

Providence Physical Therapy and Aquatic Center for therapeutic swimming
1900 Cooks Hill Rd
Centralia, WA 98531

Kirk Starr, MD- pediatrician
Pediatrics NW
316 Martin Luther King Jr Way
Tacoma, WA

Majeed Al-Mateed, MD- pediatric neurologist
Multicare Tacoma
311 S. L St.

Dr. James Jantzen, Pediatrician
Wenatchee Valley Medical Center
900 N. Mission St.
Wenatchee, WA 98801

Susan Esco, MS CCC-SLP
Manager & Provider
AAC Solutions & Rehab Services, LLC

Pediatric Development Program Rett Syndrome Clinic
Legacy Emanuel Children’s Hospital
Portland, OR
Lisa Shorett, Intake Coordinator
Clinic held first Thursday of each month