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How to Cope When Your Child Has Rett Syndrome

So you just found out that your child may have Rett, or they have been officially diagnosed with Rett Syndrome. What’s the next step, and how do you cope? Rett Syndrome is a rare neurological disorder that is almost exclusive to occurring in girls. It has mild to severe symptoms...

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My Child Has Rett: Next Steps

Rett is a rare genetic neurological disorder; only 1 in 10,000 girl births result in the syndrome. However, your child was diagnosed with Rett, and you want to know the next steps for helping your child. Here’s what you need to know.  Get Educated  Educate yourself about Rett Syndrome to...

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What is Rett Syndrome?

R​ett Syndrome is a neurological disorder that is caused by mutations on the X chromosome on the MECP2 gene. It’s primarily present in girls, although it’s possible for boys to show symptoms associated with Rett Syndrome. The genetic disorder affects nearly every part of the child’s life, including their ability...

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