Support Northwest families dealing with Rett Syndrome on a daily basis.
Become a member
All families affected by Rett Syndrome in the Northwest should consider joining. We serve Alaska, Washington, Idaho, and Oregon.
2025 Conference Wrap Up
2025 NWRSA Family Conference RecapWe are filled with gratitude as we look back on the 2025 Northwest Rett Syndrome Association Family Conference. This year’s gathering…
10 Fun Family Summer Activities for Your Family Member With Rett Syndrome
Summer is coming so it’s time to start planning your summer with fun activities for your family member with Rett Syndrome. Here we will supply…
How to Cope When Your Child Has Rett Syndrome
So you just found out that your child may have Rett, or they have been officially diagnosed with Rett Syndrome. What’s the next step, and…
My Child Has Rett: Next Steps
Rett is a rare genetic neurological disorder; only 1 in 10,000 girl births result in the syndrome. However, your child was diagnosed with Rett, and…
What is Rett Syndrome?
Rett Syndrome is a neurological disorder that is caused by mutations on the X chromosome on the MECP2 gene. It’s primarily present in girls, although…